My daughter goes back to school tomorrow after the Christmas break. That isn’t a huge thing to everyone but it is mammoth to me and even more mammoth to her. My daughter has Chronic Fatigue Syndrome and hasn’t been in school full time for nearly three years.
She first suffered a bout of Chronic Fatigue Syndrome when she was six and had the last four months of year two away from school. Then she was okay until the just after Christmas in Year five. She was given a flu jab but was given a live vaccine instead of a dead one (a no-no for CFS sufferers) and boom, bed bound for four months and the rest of year five and all of year six away from school.
She started secondary school last year and managed three weeks of a reduced timetable but went down hill again. The school have been brilliant – they have ensured we have been kept up to date with goings on and started sending a tutor out when she was well enough last year. And now she is well enough to go in albeit for a small amount of time. She is going in for an hour three times a week at first and the tutor is still coming out twice a week to do Maths and English.
The sad thing is that because it was a totally new school and then she went off sick, she hasn’t been there to make any friends. I know she is nervous as anything but she is so brave she won’t let on. It’s ironic that her health started improving about the same time my mother disowned me. Makes you wonder if all that stress wasn’t helping her either.
As parents we are responsible for protecting our children but I can’t do this for her. I’ll wait for her in the car park as it’s not worth coming home again but I can’t do it for her. I can only sit and pray she gets on okay.